Understanding endometriosis underfunding and its detrimental impact on awareness and research
World Health Organization (WHO). Endometriosis. Fact sheets. (2023).
Zondervan, K. T., Becker, C. M. & Missmer, S. A. Endometriosis. N. Engl. J. Med. 382, 1244–1256 (2020).
Google Scholar
Horne, A. W. & Missmer, S. A. Pathophysiology, diagnosis & management of endometriosis. BMJ 379, e070750 (2022).
Google Scholar
Saunders, P. T. K. & Horne, A. W. Endometriosis: Etiology, pathobiology, and therapeutic prospects. Cell 184, 2807–2824 (2021).
Google Scholar
Illum, L. R. H. et al. Temporal and regional differences in the incidence of hospital-diagnosed endometriosis: a Danish population-based study. Acta Obstet. Gynecol. Scand. 101, 737–746 (2022).
Google Scholar
Melgaard, A. et al. Utilization of healthcare prior to endometriosis diagnosis: a Danish case-control study. Hum. Reprod. 38, 1910–1917 (2023).
Google Scholar
Hansen, K. E. et al. Psychological interventions improve quality of life despite persistent pain in endometriosis: results of a 3-armed randomized controlled trial. Qual. Life Res. 32, 1727–1744 (2023).
Google Scholar
Estes, S. J., Soliman, A. M., Yang, H., Wang, J. & Freimark, J. A Longitudinal Assessment of the Impact of Endometriosis on Patients’ Salary Growth and Risk of Leaving the Workforce. Adv. Ther. 37, 2144–2158 (2020).
Google Scholar
Dixon, S., Mawson, R., Kirk, U. B. & Horne, A. W. Endometriosis: time to think differently (and together). Br. J. Gen. Pract. 74, 200–201 (2024).
Google Scholar
Sims, O. T., Gupta, J., Missmer, S. A. & Aninye, I. O. Stigma and Endometriosis: A Brief Overview and Recommendations to Improve Psychosocial Well-Being and Diagnostic Delay. Int. J. Environ. Res. Public Health 18, 8210 (2021).
Google Scholar
Viganò, P., Casalechi, M. & Dolmans, M. M. European Union underinvestment in endometriosis research. J. Endometr. Uterine Disord. 5, 100058 (2024).
Google Scholar
Carstensen, B., Rønn, P. F. & Jørgensen, M. E. Prevalence, incidence and mortality of type 1 and type 2 diabetes in Denmark 1996-2016. BMJ Open Diabetes Res. Care 8, e001071 (2020).
Google Scholar
Ng, S. C. et al. Worldwide incidence and prevalence of inflammatory bowel disease in the 21st century: a systematic review of population-based studies. Lancet 390, 2769–2778 (2017).
Google Scholar
Nabi, M. Y. et al. Endometriosis and irritable bowel syndrome: A systematic review and meta-analyses. Front. Med. 9, 914356 (2022).
Google Scholar
Simoens, S. et al. The burden of endometriosis: costs and quality of life of women with endometriosis treated in referral centres. Hum. Reprod. 27, 1292–1299 (2012).
Google Scholar
Simoens, S. et al. Endometriosis cost assessment (the EndoCost study): a cost-of-illness study protocol. Gynecol. Obstet. Invest. 71, 170–176 (2011).
Google Scholar
NIH. Budget, (2024).
Ellis, K., Munro, D. & Clarke, J. Endometriosis Is Undervalued: A Call to Action. Front. Glob. Womens Health 3, 902371 (2022).
Google Scholar
Smith, K. Women’s health research lacks funding – in a series of charts. Nature 617, 28–29 (2023).
Google Scholar
Zondervan, K. T. et al. Women’s health: tackle the research funding deficit. Nature 619, 252 (2023).
Google Scholar
Giudice, L. C., Horne, A. W. & Missmer, S. A. Time for global health policy and research leaders to prioritize endometriosis. Nat. Commun. 14, 8028 (2023).
Google Scholar
Tomlinson, M. K. Moody and monstrous menstruators: the Semiotics of the menstrual meme on social media. Soc Sem 31, 421–439 (2021).
Stanek, D. B. et al. Not ‘just a bad period’ — The impact of a co-created endometriosis social media health campaign: a mixed methods study. Front. Commun. 8, 1154297 (2023).
Google Scholar
Watson, C. Surge in endometriosis research after decades of underfunding could herald new era for women’s health. Nat. Med. 30, 315–318 (2024).
Google Scholar
Knowledge Centre for Foundations in Denmark. Overview of the 100 most grant-awarding foundations (2023).
Rahmioglu, N. et al. The genetic basis of endometriosis and comorbidity with other pain and inflammatory conditions. Nat. Genet. 55, 423–436 (2023).
Google Scholar
link